Thursday, May 21, 2009

Day 49

Almost halfway!! Jeff has had two appointments this week. Tomorrow we see Dr. Matous--Jeff's dr. It will be the first time we have had an appointment with him since seeing him in the hospital. Actually, Monday he stuck his head in the door while we were waiting for the other Dr. and said hi. Not much has changed this week except that Jeff has gone to 30mg of prednisone daily. It has brought his blood sugars down slightly. He is getting used to finger sticks and belly shots, but it still doesn't make him really happy. Food actually now has some taste to it and he is enjoying it. He has gained about 5 pounds back. He is walking betweeen 30 and 40 minutes a day on the flat at the bottom of the road. Whenever the girls are here, they walk with as do the grandkids. They either ride their bikes or go in strollers. He has some "funny" feelings in his feet that he told the dr. about the other day. It is somewhat numb but not tingling. It comes and goes as well. He had the same sensation in the hospital, but thought that it was due to how swollen his feet were with the retention of fluids. The inability to sleep despite a sleep aid is also not being fun for him---but he says that in comparison to the rash and diarrhea, he has nothing to complain about. Good spirits!! We actually went out to eat this week at a place that has the kitchen in view and will cook things exactly as you want them. He, Brooke, Breanna, and I went. Brooke and I ordered while Jeff sat outside and read a book until they brought us our order. He was pretty nervous about it, but all went well. Brooke was here for about 5 days. She took him to the dr. on Monday which gave me a great break. I watched Breanna which was a break for her. She was very helpful the whole time she was here. We also went to sacrament meeting---but sat on the couch to receive the sacrament. He wore his mask and as soon as he had partaken of the water, we got in the car and I took him home. Good times!! There is progress in Snoyland!!!

5 comments:

  1. I am so glad to hear things are improving in Snoyland! You are in my thoughts and prayers.

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  2. Great blob update. It is great to hear about the progress you are making. Happy 50th day! Keep fighting and we hope to see you soon.

    Love, Ken, Karen & Kids

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  3. I'm so glad that there is progress in Snoyland!! I also can't believe that it's halfway!! I'm so greatful that I got to come see you guys and had such a great time. Dad, you're looking great, keep up the good work!

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  4. We are glad to hear things are going better. Ryan was on predinoze as well, 150 mg. That durg has terible side effects. The worst ones were mental. So be carefull.
    Good Luck

    Ryan and Katie Norris Family

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