Day 41

Two appointments this week so far. Only a few changes in medications. Jeff has to continue to prick his finger 4 times a day to know what his blood sugars are. He is taking insulin shots 4 times a day as well. They increased his "sliding scale" of insulin, so he takes greater amounts of insulin each time before he eats. The dietician wants to send him to diabetic counseling and carbohydrate counting which doesn't make him happy at all!!!! He said he will just stop eating if that's what they're going to do. We have mixed messages. Your blood sugars are too high and we're having to give you quite a bit of insulin, and, eat, eat, eat so you don't lose any more weight. They don't jive together at all. Hmmmmmm...IV antibiotics for the blood infection are still being given. The anti-fungal medication that he is taking will not be good enough to cover any fungal infection now that he is on steroids. So, the dr ordered a new antifungal called voriconazole or vfed. It is extremely expensive---$1100 retail for 30 days. So, of course, the insurance company is wigging out and not wanting to have him on it. You would think that when they know he has had a bone marrow transplant and is immunocompromised, they would let him have the medication. So, we have been fighting with the insurance company since Monday. Just found out from our pharmacy that they approved it, but they can't get it in until tomorrow. So, Jeff's first dose will be Friday. If he gets a fungal infection in the next little bit, I will be quite ticked that they wouldn't start it right away. Our friends from the hospital--- they wouldn't let them out until he had the expensive meds in their possession because of the risk the fungal infection is pretty great in this population of patients. Hey, Jeff gained 1 pound in the last two days!! Wahoo!! It is a big deal to not have him losing anymore weight and to actually gain something. Over and out!!